Welcome to the story of my family, and an amazing journey of a little boy who is struggling to make his body work. If you are not familiar with Alex's story, check out my first blog in June (2010)

Friday, December 3, 2010

Some new things worth a mention!


It has been a while since the last installment of The Twincident. We have been busy, hectic, crazy, and having a great time with it all. Matt has been working most of his weeks in Arkansas or Missouri, and we are pushing through with lots of phone conversations and emails. Elle likes to hold the phone and breath into it while occasionally saying "Hi Daddy." I think we need to get some Skype around here!!

An Alex update:

We are really getting our act together here. I see so many great things with my little man each day. First of all, since the surgery he has gained 3 lbs. He has been at 25 lbs. for six to seven months, and in the two months since his surgery he has gained 3 (if not more) lbs. Our nutritionist comes each month. She weights him and measures him. He just wasn't gaining anything, but now we are pack'n on the pounds! We are proud of him...he is starting to get a bit of a butt!

Alex is also becoming more independent. He is walking the majority of the time! He is still stiff and tends to trip often, but he catches himself and controls himself much better. There is a confidence that wasn't there before that is amazing. He still has a few run-ins with the tables and floor resulting in some huge goose-eggs, but we are leaps and bounds from where we were.

Alex is also starting to pat his legs and the table, move his wrists side to side, and make different inflictions with his voice. No actually consonants or vowels besides the 'a' or 'e,' but we are starting to hear some progress.

One of the best things is that Alex is eating Mac'n Cheese, Spaghetti-o's, french fries, and other types of solid foods. We are easing him into it, but his eating is much better.

I would have to say the surgery has been a success!!!

An Elle update:

This is one little spit-fire if I have seen one. She is goofy...self-proclaimed "Silly," and she is such a girl.

The other day at school, the kids went to Chapel. All the kids attend this portion of school at the same time, and Elle decided to walk around all the kids sitting on the floor. When she got to the front, she put her hands behind her back and told everyone "I'm Elle" and sat down.

She is equal parts dramatic, crazy, high-maintenance, and sweet. There are so many times she plays with my hair, hugs me like crazy, or gives big kisses. She is a teeny thing with a crazy afro head of hair, and she sure does love her daddy! She might be a shy one at first, but give her a second to warm up and she will be a one act show.

Her current favorite things to say are "I silly," "I want to do it," "I'm Elle," and "Sure." Sure seems to be the answer for anything now-a-days. If I ask her to sing, she tells me her ABC's or Twinkle, Twinkle Little Star, or she tells me her numbers 1-10. She loves to fall on purpose and say "I fall down" over and over again. My personal favorite is her laugh! She giggles so loud....it's infectious. We could not go a moment with out Mickey Mouse and Santa right now, and she loves a bubble bath! Potty training is next...I need some luck with that!

A Matt Update:

Matt is in and around Arkansas most of the time. He did get to stay with me this week which was wonderful, but he is back to Missouri next week. He loves the job, but hates his time away from us. We keep things ticking here though, and we are so proud of his hard work and dedication to us! We love you daddy!

A Kelly Update:

Still kick'n :)

1 comment:

Team Hoff said...

Sounds great! Alex seems to be doing fantastic after surgery...what a relief! Sorry you're home so much by yourself. Good thing you have other family so close.