Why, oh why, old ENT, did you have to be such a slow moving doctor? I met a new ENT who, in 20 minutes, found a many errors in your "wait and see plan." You see, my Alex has tubes that are not working. My poor little man is not hearing right (now is the time you can cover your ears up and say something like..."stupid wait and see doctors." See how your sound is muffled? This is how my son hears right now). The ENT sent me to see his audiologist where we preformed some tests to figure out that the tubes were blocked. Which I have known since March when my other audiologist told me the same thing; however, good ole "old ENT" kept telling me that it is only one ear that is blocked. He explained that his other ear is working normally, so the one ear is good enough. Seriously! "New ENT" told me that is not good enough.
First Shrimp: New long-term tube placement in both ears.
Then we took a look at his chronic lymph node infections, and he said that his tonsils and adenoids are huge and he currently doesn't have an infection. I told him they are always like that. He wants them out!!
Second Shrimp: Tonsils and adenoids out of there!
He says that this will do amazing things for Alex's eating. I never really went into his eating problems, but Alex eats all pureed foods. He eats what I eat, but we just grind it up. Lately, I have added Goldfish or Cheerios, but many times the food gets caught in the back of his throat and he chokes. Heimlich remover initiated...oh wait, the Heimlich's didn't get rights to that name and so they re-termed it the Abdominal Thrust. Bad choice of names folks...it just sounds dirty! Anywho, with these guys out, we will hopefully move beyond this eating stage!!
Here is the best news! We are doing it all on Thursday the 22nd with his spine surgery! Alex will be going into Cook's on Wednesday afternoon for a pre-op registration and check-up. He will go home that evening and return at 5:30 on Thursday morning. We will start surgery at 7:30, and all the procedures will be done during his surgery time. We will then come back to recovery and stay for two days at Cook's so they can monitor the spine. The good part is that he will get a chance to be monitored for any other complications, as well as, have the IV to keep him hydrated from all the surgeries. I am so glad that they are getting everything done at the same time. It will be a tough few days afterwards, but it will be done!
Thank God for GREAT doctors, GREAT family, GREAT friends, and a GREAT GOD!
Most of all THANK YOU GOD FOR ALEX...and of course his sister, ELLE!!!
5 comments:
I am so excited to discover your blog, and to keep up with Alex! Prayers for courage are with you daily, and prayers for wisdom in the doctors' hands -- love you dearly! Sara
WooHoo, what wonderful news...finally a plan of action! You all will be in our prayers! HUGS :)
So happy to hear answers like that. We will keep Alex and all of you in our prayers!
This is all the best news ever Kelly!! Bob and I will be thinking of you and brave Alex on the 22nd. I'm having some issues right now with a herniated disc MRI found, plus two threatening discs and am experiencing some frustrations with the medical profession myself, but nothing like you've been through. The latest (after 10 days of not being able to move and just vomiting and sweating from the pain is to get another MRI and then a consultation with a pain specialist and then perhaps an injection into the spine that has to be done at the hospital!!! Plus, they told me not to take any pain meds becuz they are upsetting my digestive tract...guess I'll have to go the wine route. So happy to hear all this for you guys. Best of luck!!
You will be in our thoughts and prayers today. Hope all goes well for little Alex. Much love, The Peluses's
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