Nothing Yet

To continue making me crazy to the point I would like to act like Elle during her most dramatic tantrums, my ENT did not have a copy of Alex's MRI to review on the August 19th when he came back from, what better have been, a damned good vacation.

I called the nurse the day before to leave a friendly reminder to give me a call with a plan of action only to find out that they never got his MRI film from Cook's. I was instructed to call Cook's to figure out what happened. Well, apparently the main Fort Worth office does not keep the Northeast facilities records where Alex had his MRI. No one cared to forward on the signed medical release forms or to call the ENT to notify him that the records would not be released. On the flip side, no one at the ENT cared to check when 3 weeks went by and there were no MRI films on the doc's desk. Ahhh, thank you, thank you so much for having a valid care for my son's health.

So I had to fill out another medical release form with the Northeast office, and the reports should be there at the start of this week. Let's hope!

In the meantime, I have found another ENT that has great reviews with special needs kids. I will give my current doctor one last shot by reading the MRI film, and if I am not satisfied with his plan of action...sianara.

I just wanted to give an Alex update because I have had many people ask me how August 19th went, and well...it hasn't...went.

Arkansas

Today is a new day!

Matt accepted a job a few weeks back, and it is finally a reality! He is now an account manager of some asphalt...blah, blah, yaddi, yada, ya, something or other for the entire state of Arkansas. This is the industry he has been in for the last upteen years, and we have finally had a break.

Two years ago, his seemingly perfect job had a bankruptcy problem, and he was sent back to the asphalt trenches. He has been hardworking and has been persistent, and it has finally paid off. Starting today, Matt is now an employee of Delta.

We are so happy because it means a real, future for our family and our kids. The only slight downfall of this job is that he is the manager for the entire state of Arkansas. Yes, if you are reading into this right, we will have to move. For the next year, Matt will be traveling back and forth from Arkansas to Texas. His home office is our friendly guest bedroom; however, once he settles in to those Arkansas ways, we will be packing up and heading out. Goodbye Texas, Hello Arkansas summer 2011. Get your fill of the Hunt family folks, because we are going to be residing somewhere within the great state of Arkansas in the next year!

We know that this adds some stress to Alex' story, but Matt's new boss is a wonderful man who puts family first. He will be able to be around for all our little man's upcoming, whatevers, that he will need! (Sidenote: no word yet on the direction we are going to take with Alex.) I feel that this is exactly where we need to be even though I don't want to leave our families for the life of me.

Matt, I am your biggest fan! I know that you can do this, and I know that it is your time to shine. I love you and I believe in you! Your babies and I are ready to take this journey. You are our hero!

A walking we will go...

Today was a pretty cool day. I am not sure if it is the antibiotics in my Alex's system or some kind of adrenaline rush, but whatever it was, I will take it! He was a walkin-man today. He was pushing away from my hand and taking control of his movement. He was balancing great and catching himself with his feet before he even had a chance to fall over. He even fell back at one point and put his hands down (which if you read his story is a first in our book). I am so proud of him! Maybe he just knows that he is about to go back to school tomorrow, and he wants to be a big boy:)

Elle on the other hand decided that the allergy bug would bite her today. She woke up sneezing and it just never quit. She was a trooper though! It did not stop her from demanding attention, and playing like a maniac.

As for an Alex update...We have another swollen gland issue. They are back!!! So we had to head to the wonderful Doctor Davidson, our pediatrician, for some antibiotics. I would have called my ENT, but he is still on vacay...it better be a good one! I hope to be the first to leave a message on the 19th to see what the reports say, and we will fill you in from there on our plan of action.

I have been contacted by Scottish Rite too. We are in the process of filling out a ton of paper work, and then they will get back to me as well.

On a sad note....I have to go back to work tomorrow. Boo! On a happy note, Matt starts his new job on Tuesday. I will fill in details on my next blogging.

Seriously??

So here I am waiting all week for the MRI images to go to my ENT so that he can read them and decide what our plan of action will be. Getting antsy, I decided to call today to find out if the images made it to his office yet. Well, apparently my ENT will be out of the office until August 19th because he is on vacation. So, even if the images are on his desk, I cannot find out nor plan anything until he gets back. Could they be any more difficult?? I think I need a vacation more than him!

...and the wait continues!

As the summer is coming to a close, we are starting to make appointments and arrangements with our doctors to get the very large ball to a slow and not quite so steady roll. I think the ball is flat! We push and push, yet we seem to get nowhere fast. Here is what the last few weeks have delivered.

1. Another trip to the ENT because Alex's glands flared up again. They are going to get the radiology records for Alex's brain MRI to see if it shows far enough down into his throat. If not, we are going to do another MRI of his throat to get a good idea if it is a Branchial cleft cyst or a lymph node that doesn't want to behave. The records were sent for on Friday of last week, but have not yet been received to review. I am hoping that we will hear something today or tomorrow.

2. I received more detailed paperwork from Scottish Rite to fill out. I am sending that back out today, and hopefully once they receive it we can get in!

3. Neurosurgeon appointment at Cook's on September 8th.

Even though we have more information, we are still in about the same place as we were a few weeks ago. Hopefully we can get this flat ball aired up and ready to roll. I feel that it will start to pick up speed right around next Monday when I have to go back to work. Joy?!?!

On a great note, the kids are getting ready to head back to CLC. I love it there and they definitely love my kids! Can't wait to see all our buddies and to make some new ones. Hello 2 year olds!